After spending nine months at the Children’s Hospital of Philadelphia with our precious Hudson, we wanted to share a few things that helped us along the way. Our friends and family did these things so well and we are forever grateful.
Hopefully, this list will help you if you find yourself with friends in this horrible situation.
1. Pray: the family is exhausted, desperate and at the end of their rope. They have little to no energy to pray for themselves so pray for them often and let them know that you are praying. Add the family to prayer emails at your church. If possible, keep up to date with the current situation with their child and pray specifically.
2. Send Money: hospital life drains a bank account fast. Parking alone can cost $150-$200 a month plus if the family had to relocate, out of town housing immediately hits their budget. Many families lose jobs if care is long term.
3. Send Food: Seamless Web or Grubhub will let you order, pay and tip from anywhere in the country and deliver it directly to the family. If you don’t use those websites, you can easily find a pizza or sub place near the hospital to deliver.
4. Send notes of encouragement and truth. While incredibly hard to believe truth while in the dark, it is helpful to receive scripture and notes of truth.
5. Don’t stop reaching out. Whether a text message, a voicemail or a note in the mail, don’t stop contacting the parents. They are consumed with fear and dealing with doctors and specialists all day long so they may not reply but don’t back away.
6. Take care of their home while they are away. Mowing the grass, checking the mail (and forwarding it), cleaning it before they return.
7. Go! I know this may be impossible depending on the family situation in the hospital and your situation. But, if you are close to the family and there is a way, go by and see them. If they are local, go even for a few minutes. It can feel like a war zone and like the rest of the world keeps spinning and doesn’t know you are at war. People stepping inside the war zone makes you feel remembered and supported.
8. Send money (or gift cards). Saying it twice on purpose. While a homemade meal is wonderful, worrying about rent, house payments, medical bills and so on is salt in a very painful wound. If the family doesn’t have a fund, create one and get friends to give. The only way our family survived was standing on the shoulders of people who love us.
9. Send something funny. I know this may seem a little strange and it might not work for some people, but getting a good belly laugh out of me in the last year of my life has been almost impossible. A few friends were good at this and believe it or not, that voicemail left in a crazy voice made me laugh out loud as I had tears in my eyes walking to the hospital AGAIN.
10. Share their emotions. If you are grieving with the family, let them know. If you are thinking of them, let them know. If you cry about their child’s situation, let them know. It is so hard to step inside the pain of the situation but somehow it helps. It doesn’t make sense really but it does help to know that others are feeling at least a portion of what you are feeling like the parent.
Bonus ideas: help with siblings, care packages, cleaning service, help with pets, send a book, buy a subscription to Netflix or Hulu, do laundry, do something special for holidays/birthdays
Posted in honor and memory of the strongest little man I’ve ever met, our Hudson.
